CFSAC Testimony
http://www.facebook.com/note.php?note_id=155537251132814&id=43354982370&ref=mf
by P.A.N.D.O.R.A., Inc. - Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy, Inc. on Friday, September 17, 2010 at 9:24am
http://www.facebook.com/note.php?note_id=155537251132814&id=43354982370&ref=mf
by P.A.N.D.O.R.A., Inc. - Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy, Inc. on Friday, September 17, 2010 at 9:24am
"As an organization that works to improve the quality of life for people with NeuroEndocrineImmune Disorders, we recommend people submit written testimony or register to give live testimony Chronic Fatigue Syndrome Advisory Committee meeting, scheduled for Oct. 13 & 14.
Since one of the topics for the meeting is "current and proposed diagnosis and treatment methods," this is a good opportunity to tell the stories of problems with accessing medical insurance, private disability and ERISA employer disability. We have heard of some terrible experiences. This is a good time to bring attention to this area that needs to be changed."
